PCD Smiles is a 100% non-profit organization, funded solely through donations.
This program is designed to bring Smiles to hospitalized PCD patients through the gift of Cheer Packages.
To request a Cheer Package for you or your hospitalized PCDer, please visit our "Request Cheer Package" link and fill out our secure form.
If you would like to donate items to PCD Smiles's Cheer Packages, please visit our "Donations" page.
And the answer to yesterday’s Tuesday Trivia is;
(D) 6 months, 3 months
Pari Nebulizer cups should be replaced every 6 months, and all other nebulizer cups should be replaced every 3 months. The filter on your nebulizer machine (if it has one) should also be changed every 6 months, or when the filter gets wet or spongy. Be sure to join us this Thursday for our topic on the “Care and Feeding of Your Nebulizer”.
Dear Smile E.,
I’ve noticed several PCD pages, images, and so on use the turtle image; is there any significant meaning towards PCD?
Thanks,
An Anonymous PCD Family
Dear Anonymous PCD Family,
The turtle represents our so called "turtle days", or also called "PCD crash days", a "PCD hangover", and so on. Every PCD patient has their own name for it, or we did until everyone connected up through Facebook. A PCD adult called their’s a “turtle day”, and it just struck a cord with most of the PCD community a few years ago. The logos for PCD Smiles and PCD Style were drawn by one of our team members a few years ago when the PCD craze over turtles began.
Basically a turtle day is those days we just are so tired that we crash or just can't get going. Maybe the day or days leading up to it we have done a lot or had big packed days; then the next day we wake and can barely do anything but treatments, we may or may not have a fever, but we are definitely overly tired. So I hope the turtle day description makes sense.
Yours Truly,
Smile E. Turtle
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And tune in next Sunday to read the latest Ask Smile E.
