Dear Smile E.
Do you know of any PCD patient only support groups on Facebook? I have questions and concerns that I don’t want my family to see. Thank you!
Signed,
Privately PCD
Dear Privately PCD,
I can understand your need for privacy from those without PCD. We with PCD all have questions from time to time that we need the experience of someone who has been there. It’s also nice to be able to ask pertinent questions without the shocked responses from non family members and other members of the community. There is a private PCD adult patient only group on Facebook. You have to be over eighteen years of age and be the person who actually has PCD to join. Due to Facebook privacy settings you will need to be invited to the group by a current group member that you are friended with on Facebook. Feel free to drop our me a private message through our Facebook page and I can get you set up with someone to help facilitate your invite to the group.
Yours Truly,
Smile E. Turtle
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