2022 PCD Artist Project

Written by PCD Smiles on 03 November 2022. Posted in PCD Artist Project 2022.

2022 PCD Artist Project: That’s a Wrap!

What an amazing year for the PCD Artist Project! I could not have asked for a more amazing group of artist who answered our last minute call to save this year’s project. I’d like to take this opportunity to publicly thank each and every artist who participated in the third annual PCD Artist Project. With their talents I’m am happy to report that we’ve raised $1,000 and counting for the PCD Smiles cheer package program. Exhibit merchandise for the PCD Artist Project 2022 will be available for purchase throughout the next eighteen months. Please help us continue the PCD Smiles mission for shipping smiles to hospitalized PCD patients through the gift of a cheer package, no matter their age. We hope that you enjoy our video presentation of the 2022 exhibit.

To check out our 2022 exhibit.

For more information on the PCD Artist Project.

PCD Smiles would like to extend an invitation to join our 2023 project which is slated to begin mid January 2023. If you are a PCD artist or an artist with a PCD family member or are friends with a PCD patient we would love to have you join us in 2023.

For more information please join the PCD Artist Project Facebook group;

Join our Facebook group Turtle Talk Café today.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***

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Written by PCD Smiles on 02 November 2022. Posted in PCD Artist Project 2022.

2022 PCD Artist Project; November 3, 2022

Today’s featured artist is Crissi Brooks with her submission titled “History”.

“Primary ciliary dyskinesia is a genetically and clinically heterogeneous syndrome. Impaired function of motile cilia causes failure of mucociliary clearance. Patients typically present with neonatal respiratory distress of unknown cause and then continue to have a daily wet cough, recurrent chest infections, perennial rhinosinusitis, otitis media with effusion, and bronchiectasis. Approximately 50% of patients have situs inversus, and infertility is common. While understanding of the underlying genetics and disease mechanisms have substantially advanced in recent years, there remains a paucity of evidence for treatment.” ~ Primary ciliary dyskinesia in the genomics age: JS Lucas, SD Davis, H Omran, A Shoemark - The Lancet Respiratory Medicine, 2020

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD friend or family member.

The PCD Artist Project’s 2022 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

https://www.smileecove.com/stores/cove

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!

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Written by PCD Smiles on 01 November 2022. Posted in PCD Artist Project 2022.

2022 PCD Artist Project; November 2, 2022

Today’s featured artist is Shayne Wells with his submission titled “One Breath”.

“Primary ciliary dyskinesia (PCD) is usually inherited as an autosomal recessive disorder and presents with upper and lower respiratory tract infection, and mirror image arrangement in around 50% of cases. Cilia dysfunction is also implicated in a wider spectrum of disease, including polycystic liver and kidney disease, central nervous system problems including retinopathy and hydrocephalus, and biliary atresia. Cilia are complex structures, containing more than 250 proteins; recent studies have begun to locate PCD genes scattered throughout the genome.” ~ Bush A, Chodhari R, Collins N, et al Primary ciliary dyskinesia: current state of the art Archives of Disease in Childhood 2007;92:1136-1140.

The PCD Artist Project’s 2021 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

https://www.smileecove.com/stores/cove

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!

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Written by PCD Smiles on 31 October 2022. Posted in PCD Artist Project 2022.

2022 PCD Artist Project; November 1, 2022

Today’s featured artist is Sophie Tarry with her submission titled “Mountains”.

“Primary ciliary dyskinesia (PCD) is a rare inherited disorder caused by defects in the structure and/or function of cilia. Cilia are tiny hair-like structures, which are required to move fluids and particles in various parts of the body, including the airways. If there are defects in the cilia lining the airways, the body is unable to expel foreign material and clear mucus. This can lead to pulmonary complications, including frequent infections of the lungs, ears, throat and sinuses. People with PCD may have persistent or recurrent infections, which can significantly disrupt their quality of life and sometimes lead to permanent damage and life-threatening complications.” ~ Children's Hospital of Philadelphia

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

https://www.smileecove.com/stores/cove

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!

Hits: 1784

Written by PCD Smiles on 30 October 2022. Posted in PCD Artist Project 2022.

2022 PCD Artist Project; October 31, 2022

Today’s featured artist is Mel LaPour with her submission titled “Transition”.

“Clinical symptoms in PCD affect the entire respiratory tract; the majority of symptoms occur on a chronic, daily basis and start soon after birth. At least 80% of newborn babies with PCD develop neonatal respiratory distress despite a full-term gestation, with increased work of breathing, tachypnea, and prevalence of upper and middle lobe atelectasis on chest radiographs. Most PCD patients are well immediately after birth, but develop respiratory distress at 12–24 hr of life (as opposed to other causes of respiratory distress in term neonates (e.g., transient tachypnea of the newborn—TTN), which often present in the first few hours after birth). A small proportion of PCD patients are discharged home on day 1 of life but are then hospitalized with respiratory distress within the first few weeks of life. Often misdiagnosed with TTN or pneumonia, PCD infants frequently require supplemental oxygen for days to weeks.” ~ Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review - Adam J. Shapiro MD, Maimoona A. Zariwala PhD, Thomas Ferkol MD, Stephanie D. Davis MD, Scott D. Sagel MD, PhD, Sharon D. Dell MD, Margaret Rosenfeld MD, Kenneth N. Olivier MD, Carlos Milla MD, Sam J. Daniel MD, Adam J. Kimple MD, Michele Manion, Michael R. Knowles MD, Margaret W. Leigh MD, for the Genetic Disorders of Mucociliary Clearance Consortium

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

https://www.smileecove.com/stores/cove

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!