• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

PCD Resource List

      Your one stop source for all things primary ciliary dyskinesia. Cant' find what you are looking for? Do you want to add a link to your primary ciliary dyskinesia related page, article, blog, merchandise? Please direct all inquires to our email; This email address is being protected from spambots. You need JavaScript enabled to view it..

             Organizations

                        Australia PCD

                                    Website: https://pcdaustralia.org.au

                                    Facebook: https://m.facebook.com/PCDAustralia/?fref=ts

                                    Twitter: https://mobile.twitter.com/PCDAustralia                

                         

                        Breathing Together PCD/Kartagener's Cyprus

                                    Facebook: https://m.facebook.com/pcd.cyprus/

                        French Primary Ciliary Dyskinesia Association

                                    Website: https://www.adcp.asso.fr

                                    Facebook: https://m.facebook.com/ASSODCP/

                        Italian Association for PCD

                                    Website: http://www.pcdkartagener.it/

                                    Facebook: https://m.facebook.com/groups/AIDKartagener

                        PCD Family Support Group UK

                                    Website: http://pcdsupport.org.uk

                                    Main Facebook: https://m.facebook.com/PcdFamilySupportGroupUk/?fref=ts

                                    Regional Scotland Facebook: https://m.facebook.com/PCDfamilysupportscotland/

                                    Twitter: https://twitter.com/PCD_UK: https://mobile.twitter.com/PCD_UK

                                    Support Group: https://healthunlocked.com/pcdsupport

                        PCD Foundation

                                    Website: https://pcdfoundation.org

                                    Facebook: https://m.facebook.com/PCDFoundation/

                                    Twitter: https://mobile.twitter.com/PCDFoundation

                        PCD Scholarship 

                                    Website: http://pcdscholarship.org

                                    Facebook: https://m.facebook.com/PCDscholarshipfundaution/?fref=ts

                        PCD Smiles

                                    Website: http://www.pcdsmiles.com

                                    Facebook: https://m.facebook.com/PCDsmiles/

                        Running on Air

                                    Website: https://runningonair.net

                                    Facebook: https://m.facebook.com/profile.php?id=395884040577403&ref=content_filter

                                    Twitter: https://mobile.twitter.com/Mary_RunOnAir

            Blogs

                        Chronically Ashley

                                    https://chronicallyashley.wordpress.com

                        Fighting for Air

                                    http://fightforair.blogspot.com

                        PCD Fighter

                                    https://m.facebook.com/tempo.tine/

                        Spoon Rest

                                    https://spoonrestblog.wordpress.com

                        Running with Hope

                                    http://rachelleandjordan.blogspot.com

                        Running on Air

                                    https://runningonair.net/blog

            Huffington Post PCD Authors

                        Jen Faulkner

                                    https://www.huffingtonpost.co.uk/author/jen-faulkner/

           

            The Mighty PCD Authors

                        Carey Kauffman

                                    https://themighty.com/u/careykauffman/

                        Mary Kitlowski

                                    https://themighty.com/u/mary-kitlowski/

            Podcasts

                        The Chronic Hustle

                                    https://open.spotify.com/show/71CYcLa7zfwcCfF6xleQRm?context=spotify%3Ashow%3A71CYcLa7zfwcCfF6xleQRm&si=fQUlD_vFRiSfvU92WPBECg&nd=1

                        Turtle Talk

                                  http://www.pcdsmiles.com/turtle-talk-2

            Instagram

                        April Russo

                                    https://instagram.com/aprilr17

                       

                        Berkely’s Crazy Life

                                    https://instagram.com/berkeleyscrazylife

                        Breathe For PCD

                                    https://instagram.com/breatheforpcd

                        Breathing PCD

                                    https://instagram.com/breathingpcd

                       

                        Kristen Weinbel 

                                    https://instagram.com/kristenweinbel

                       

                        PCD Australia 

                                    https://instagram.com/pcd_australia

                        PCD Fighter               

                                    https://instagram.com/tempo.tine

                        PCD Foundation 

                                    https://instagram.com/pcdfoundation            

                        Running On Air

                                    https://instagram.com/runningono2

                        Teen PCD

                                    https://instagram.com/teen_pcd

            YouTube Channels

                        Ellery’s Life

                                    https://m.youtube.com/user/elleryslife?itct=CBYQ6p4EIhMIsJDCiYTV4gIVZ4fCAR0anAX0&csn=eB75XJvKFYOejQS7p4-ADQ&wlfg=true

                        I Am Chloe R

                                    https://www.youtube.com/channel/UCKT6sS5qwdfw1FvnwCAstnA

                        Kylee Liggatt

                                    https://www.youtube.com/channel/UCAQseyzWOKrDCfT6U4FF_rg

                        My PCD Life

                                    https://www.youtube.com/channel/UCSdVL9ErZQYPJla3qNR4FJg

            Facebook Pages

                        Australia PCD

                                    Website: https://pcdaustralia.org.au

                                    Facebook: https://m.facebook.com/PCDAustralia/?fref=ts

                                    Twitter: https://mobile.twitter.com/PCDAustralia

                        Breathing Together PCD/Kartagener's Cyprus

                                    Facebook: https://m.facebook.com/pcd.cyprus/

                        Breathe For PCD

                                    Website: https://www.breatheforpcd.com/what-is-pcd

                                    Facebook: https://m.facebook.com/breatheforpcd/

                        Chloe R

                                    Website: https://www.chloerfernandez.com

                                    Facebook: https://m.facebook.com/IAMChloeR/

           

                        Ellery

                                    Website:

                                    Facebook: https://m.facebook.com/elleryslife/

                       

                        French Primary Ciliary Dyskinesia Association

                                    Website: https://www.adcp.asso.fr

                                    Facebook: https://m.facebook.com/ASSODCP/

                        PCD Fighter

                                    Website:

                                    Facebook: https://m.facebook.com/tempo.tine/

                        PCD Foundation

                                    Website: https://pcdfoundation.org

                                    Facebook: https://m.facebook.com/PCDFoundation/

                                    Twitter: https://mobile.twitter.com/PCDFoundation

                       

                        PCD Scholarship 

                                    Website: http://pcdscholarship.org

                                    Facebook: https://m.facebook.com/PCDscholarshipfundaution/?fref=ts

                        PCD Smiles

                                    Website: http://www.pcdsmiles.com

                                    Facebook: https://m.facebook.com/PCDsmiles/

                        PCD Style

                                    Website: https://shop.pcdstyle.com/index.php

                                    Facebook: https://m.facebook.com/profile.php?id=614784545331095&ref=content_filter

                        Running on Air

                                    Website: https://runningonair.net

                                    Facebook: https://m.facebook.com/profile.php?id=395884040577403&ref=content_filter

                                    Twitter: https://mobile.twitter.com/Mary_RunOnAir

            Facebook Public Groups

                        PCD Awareness

                                    https://m.facebook.com/groups/731783893639556?group_view_referrer=profile_browser

                        PCD Foundation "One in a Million" Campaign

                                    https://www.facebook.com/groups/williamjanton/

                        PCD Fundraisers

                                    https://www.facebook.com/groups/818720318234925/

            Facebook Closed Groups

                        Italian Association for PCD

                                    https://www.facebook.com/groups/AIDKartagener/?ref=share

                        Ohio PCD Families

                                    https://m.facebook.com/profile.php?id=1525325957700100&ref=content_filter                

                        PCD Alabama

                                    https://m.facebook.com/groups/978289515569317?group_view_referrer=profile_browser

                        PCD Australia Family Support Group

                                    https://m.facebook.com/groups/379987042108310

                       

                        PCDF Connect (PCD Foundation)

                                    https://www.facebook.com/groups/PCDFconnect/

                        PCD Families Pennslyvania/NJ

                                    https://www.facebook.com/groups/1728760464069251/

                        PCD Family Support

                                    https://www.facebook.com/groups/pcdfamilysupport/?fref=ts

                        PCD / Kartagener Syndrom Deutschland

                                    https://m.facebook.com/groups/1421044691482264

                        PCD Minnesota

                                    https://www.facebook.com/groups/306584680287210/

                        PCD Support Group Ireland

                                    https://m.facebook.com/groups/816827761779783/

                        PCD Western NY

                                    https://www.facebook.com/groups/606149672829436/

                        Primaire Ciliaire Dyskinesie (PCD) Belgium

                                    https://m.facebook.com/groups/201853759835111

                        Primary Ciliary Dyskinesia And Immotile Cilia Syndrome support

                                    https://m.facebook.com/groups/317968495047543/?fref=ts

                        Turtle Talk Café

                                    https://www.facebook.com/groups/turtletalkcafe

                        UK & Scotland Support Groups are not on Facebook***

            Facebook Secret Groups

            (links won’t work unless you’re a member of the group listed)

                        KS/PCD Loss Support Group

                                    https://m.facebook.com/groups/997846333632317?group_view_referrer=profile_browser

                        PCD Adult Care

                                    https://www.facebook.com/groups/453172514787251/?ref=br_rs

                        PCD Georgia

                                    https://www.facebook.com/groups/753991007953358/?ref=share

                        PCD: Good, bad, and everything in between

                                    https://m.facebook.com/groups/1412454918967366/?fref=ts

                        PCD Related Infertility Support

                                    https://m.facebook.com/groups/684614838327644?group_view_referrer=profile_browser

            Facebook Fundraiser Groups

                        PCD Foundation "One in a Million" Campaign

                                    https://www.facebook.com/groups/williamjanton/

                        PCD Fundraisers

                                    https://www.facebook.com/groups/818720318234925/

            Websites

                        Australia PCD

                                    Website: https://pcdaustralia.org.au

                                    Facebook: https://m.facebook.com/PCDAustralia/?fref=ts

                                    Twitter: https://mobile.twitter.com/PCDAustralia

                        Breathe For PCD

                                    Website: https://www.breatheforpcd.com/what-is-pcd

                                    Facebook: https://m.facebook.com/breatheforpcd/

                        French Primary Ciliary Dyskinesia Association

                                    Website: https://www.adcp.asso.fr

                                    Facebook: https://m.facebook.com/ASSODCP/

                        PCD Family Support Group UK

                                    Website: http://pcdsupport.org.uk

                                    Main Facebook: https://m.facebook.com/PcdFamilySupportGroupUk/?fref=ts

                                    Regional Scotland Facebook: https://m.facebook.com/PCDfamilysupportscotland/

                                    Twitter: https://twitter.com/PCD_UK

                                                https://mobile.twitter.com/PCD_UK

                                    Support Group: https://healthunlocked.com/pcdsupport

                        PCD Foundation

                                    Website: https://pcdfoundation.org

                                    Facebook: https://m.facebook.com/PCDFoundation/

                                    Twitter: https://mobile.twitter.com/PCDFoundation

                        PCD Scholarship 

                                    Website: http://pcdscholarship.org

                                    Facebook: https://m.facebook.com/PCDscholarshipfundaution/?fref=ts

                        PCD Smiles

                                    Website: http://www.pcdsmiles.com

                                    Facebook: https://m.facebook.com/PCDsmiles/

                        PCD Style

                                    Website: https://shop.pcdstyle.com/index.php

                                    Facebook: https://m.facebook.com/profile.php?id=614784545331095&ref=content_filter

                        Running on Air

                                    Website: https://runningonair.net

                                    Facebook: https://m.facebook.com/profile.php?id=395884040577403&ref=content_filter

                                    Twitter: https://mobile.twitter.com/Mary_RunOnAir

            Books

                        PCD Has Nothing On Me

                                    https://www.amazon.com/Pcd-Has-Nothing-Chloe-Fernandez/dp/1489707085/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1559834183&sr=1-3

                        PCD Smiles Cookbook 2017

                                    https://shop.pcdstyle.com/index.php

                                    https://www.amazon.com/PCD-Smiles-Cookbook-Christopher-Dale/dp/1389272915

                                    https://www.amazon.com/Pcd-Smiles-Cookbook-Christopher-Dale/dp/1389272923/ref=tmm_hrd_swatch_0?_encoding=UTF8&qid=&sr=

            Ebooks

                        PCD Has Nothing On Me

                                    https://www.amazon.com/Pcd-Has-Nothing-Chloe-Fernandez-ebook/dp/B07922JZ9Y/ref=tmm_kin_swatch_0?_encoding=UTF8&qid=1559834183&sr=1-3

            Annual Events

                        Drive Fore PCD

                                    https://www.driveforepcd.com

                        PCD Family Night/ Fall Festival

                                    https://m.facebook.com/Pcdfamilynight/

                        PCD Scholarship 

                                    Website: http://pcdscholarship.org

                                    Facebook: https://m.facebook.com/PCDscholarshipfundaution/?fref=ts

            Twitter

                        PCD Family Support Group UK

                                    Website: http://pcdsupport.org.uk

                                    Main Facebook: https://m.facebook.com/PcdFamilySupportGroupUk/?fref=ts

                                    Regional Scotland Facebook: https://m.facebook.com/PCDfamilysupportscotland/

                                    Twitter: https://twitter.com/PCD_UK

                                                https://mobile.twitter.com/PCD_UK

                                    Support Group: https://healthunlocked.com/pcdsupport

            Medical Papers

                        Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

                                    https://onlinelibrary.wiley.com/doi/pdf/10.1002/ppul.23304

                        NTM Patient Pamphlet (Chinese)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/chinesepamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Français)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/frenchpamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Deutsch)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/germanpamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Dutch)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/dutchpamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (English)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/englishpamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Español)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/spanishpamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Japanese)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/japanesepamphlet_ntminfo.pdf

                        NTM Patient Pamphlet (Korean)

                                    https://www.ntminfo.org/wp-content/uploads/2018/04/koreanpamphlet_ntminfo.pdf

                        PICADAR: a diagnostic predictive tool for primary ciliary dyskinesia

                                    https://erj.ersjournals.com/content/erj/47/4/1103.full.pdf

           

            Product Links

                       

                         PCD Style

                                   Merchandise; https://store.pcdstyle.com

                                                         https://www.smileecove.com/stores/cove
                                               

                         PCD Artist Project

                                    Merchandise; https://www.smileecove.com/stores/cove

 

                         Smile E Cove

                                    Merchandise; https://smileecove.com/stores/cove/

 

                        PICC Line Covers & Port Access Clothing

                                    https://www.careandwear.com

                          Breathe for PCD

                                    Website: https://www.breatheforpcd.com/what-is-pcd

                                    Facebook: https://m.facebook.com/breatheforpcd/

                                   Merchandise; https://shop.spreadshirt.com/breatheforpcd/

 

                          PCD Angel Jewellry

                                    https://m.facebook.com/PCD-Angel-Jewellery-179763778758950/

                                    http://www.pcd-angel.co.uk/

                        Running On Air

                                 Merchandise

               

                    

(If the link or information provided in this article belongs to you and you wish to have it removed from this page please email; This email address is being protected from spambots. You need JavaScript enabled to view it.)

Sponsor a PCD Smiles Cheer-box today!
https://shop.pcdstyle.com/index.php?id_category=14&controller=category

Get your “Official” turtle care ribbon gear today!
https://www.smileecove.com/stores/cove

https://store.pcdstyle.com

#PCDsmiles #PCDstyle #PCDsmilesCookbook  #PrimaryCiliaryDyskinesia  #SmileEcove 

#PCDawareness to help find a #cure4PCD!

 

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