Physiotherapy | PCDsmiles

Written by PCD Smiles on 27 November 2023. Posted in Physiotherapy.

Snowball fights; Fun-Physio with PCD Smiles

Turn treatment-time into play-time with snowball fights. Never underestimate the value of a good snowball fight, especially when it comes to mobilizing secretions. Form the disorganized breathing to the cardio it can get your PCD loved one coughing, which coughing should be encouraged. Cough suppression in PCD can lead to being problems with bacterial retention in the airways. The whole aim of treatments in primary ciliary dyskinesia is to get the person with PCD coughing to manually clear their airways from debris, bacteria, and particles. Disordered breathing and exercise is one way to help achieve this aim. Let’s face it, doing the same airway clearance technique day in and day out can get boring. In fact it can lead to treatment noncompliance, especially in the younger people with PCD. Switching up your airway clearance techniques often can help combat boredom and increase treatment compliance. As always you Should speak with your PCD team to determine which airway clearance techniques are appropriate for your PCD status, because not everything we talk about on Fun-Physio with PCD Smiles may be appropriate for your exact situation. It’s always best to consult your clinic on treatment options. It’s important to remind you of the body’s airways natural reaction to cold, which is constriction. Take care to provide protection in the form of scarves or other face coverings to prevent airway constriction which will impede secretion mobilization and thereby defeat the purpose of outdoor winter play for airway clearance. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 21 November 2023. Posted in Physiotherapy.

Sledding; Fun-Physio with PCD Smiles

Turn treatment-time into play-time with sledding. It takes being creative to get airway clearance into your schedule and still have fun while not making airway clearance seem like a punishment. After the next big snow try moving your airway clearance session outside with a bit of sledding. Sledding helps get your heart rate up and increase irregular breathing patterns that can help mobilize secretions and include coughing. The down side is that you want to make sure your PCDers mouth and nose are protected from the cold by scarves of other outdoor protective products like a face mask for skiing or other snow time activities. Airways have a built in mechanism to protect themselves from the cold, and that is to retract. This airway retraction can cause discomfort and stop secretions in their tracks. That’s not what you want. You want to mobilize the secretions and induce coughing to help remove the secretions the the airway completely. So exercise some precautions and get outside and e that fresh powder. But above all remember to cough, cough it up and spit it out. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 01 November 2022. Posted in Physiotherapy.

Ice Skating; Fun-Physio with PCD Smiles

Turn treatment-time into play-time with ice skating. Ice skating helps build stamina, strong muscles including respiratory muscles, and helps promote airway clearance through coughing and mobilizing secretions. Try signing up for ice skating lessons to explore if they are of interest to you or your PCD loved one.

If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#FunPhysioWithPCD #PCDchallenge

#PCDawareness to help find a #cure4PCD!

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Written by PCD Smiles on 26 October 2022. Posted in Physiotherapy.

Leaf Cleanup; Fun-Physio with PCD Smiles

Turn treatment-time into play-time with leaf play. Doing outside chores like leaf cleanup can present opportunities to squeeze in some airway clearance for your PCD loved one. Airway clearance doesn’t always have to be scheduled or timed just right. Taking advantage of unusual opportunities to squeeze in a little extra coughing is very important in keeping your PCD loved one’s airways clear. Sometimes all it takes is a bit of coughing. Activities like chores that could also turn into fun can induce coughing.

See I was brought up that coughing was bad and something to be hidden. It should never be done in front of people. Coughing also signaled that I needed to stop what I was doing and sit down. Honestly that was virtually the wrong thing to do for a person with PCD. Even some of my doctors were in agreement that coughing needed stopped, stifled, and signaled I was over exerting myself. In PCD we retain our cough clearance, so in essence coughing is the right thing to do always. Coughing is good grooming in PCD care. We need to cough. If your PCDer is coughing don’t cringe, celebrate and encourage coughing. Coughing helps keeps our airways clear of debris and bacteria that can cause pulmonary infections. Better out than in, remember that old saying. Cough, cough, cough, and more coughing.

Chores that turn into playtime get done faster and encourages people to repeat the chore next time. And come on, who hasn’t played in the leafs while cleaning them up for winter? Play in the leaves and get coughing! If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#FunPhysioWithPCD

#PCDawareness to help find a #cure4PCD!

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Written by PCD Smiles on 18 October 2022. Posted in Physiotherapy.

Trail running; Fun-Physio with PCD Smiles

Turn treatment-time into play-time with tail running. Running in general has so many benefits in general for pulmonary patients. In PCD the added rugged terrain of trail running aids in mucus clearance. Give it a try today. You may just find a new airway clearance tool for your tool box. If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles #PCDstyle #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#FunPhysioWithPCD

#PCDawareness to help find a #cure4PCD!