• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
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  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
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  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
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  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nothing is Sacred when you have PCD

    Nothing is Sacred when you have PCD

    Written by PCD Smiles on September 17, 2023. Posted in Topic Thursday

    There are a lots of things that I’ve had to get used to as I grew up doing life with PCD. One of those things was learning that unlike most others I had no privacy. I mean absolutely none...
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Written by PCD Smiles on August 27, 2023. Posted in Topic Thursday

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
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  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Written by PCD Smiles on August 24, 2023. Posted in Topic Thursday

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
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  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    Written by PCD Smiles on October 05, 2022. Posted in Topic Thursday

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
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Written by PCD Smiles on . Posted in Random Fact Friday.

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to improve mucus clearance. Antibiotic therapy is required and routine immunization is advised. Sinus disease can be treated with nasal steroids and nasal lavage. Polyps may require surgical treatment. Audiological assessment, hearing aids, and communication assistance should be offered where necessary. Patients with end-stage lung disease are candidates for lung transplantation.” ~ Orpha.net; Primary Ciliary Dyskinesia 

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

  • Hits: 199

Written by PCD Smiles on . Posted in Random Fact Friday.

Persistent nasal obstruction is very common at all ages, as children and adults refer a daily year-round nose congestion evident yet in the neonatal period or in the first years of life.

https://www.frontiersin.org/articles/10.3389/fped.2017.00135/full 

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist;  https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donationsQ

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 749

Written by PCD Smiles on . Posted in Random Fact Friday.

By adulthood, nearly every person with PCD will have bronchiectasis. As bronchiectasis progresses, infections worsen and can sometimes lead to respiratory failure. Some people with PCD may need lung transplantation if their lungs fail. 

https://www.thoracic.org/patients/patient-resources/resources/pcd.pdf

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 767

Written by PCD Smiles on . Posted in Random Fact Friday.

Most observational studies in PCD have been cross-sectional, and knowledge of prognosis is based on a handful of longitudinal studies with relatively few patients.

https://adc.bmj.com/content/99/9/850

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 650

Written by PCD Smiles on . Posted in Random Fact Friday.

People with PCD who live together, can help decrease the spread of germs between themselves by doing airway clearance at different times and in different rooms.

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 719

More Articles …

Page 1 of 15

What do I do if I have no support system?

What do I do if I have no support system?

Written by PCD Smiles on September 17, 2023. Posted in Ask Smile E.

Dear Smile E. I have no support system. I mean absolutely nothing. How do I find one? Signed,...
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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Written by PCD Smiles on August 27, 2023. Posted in Giving Saturday

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Read More
Random Fact Friday 1

Random Fact Friday 1

Written by PCD Smiles on August 25, 2023. Posted in Random Fact Friday

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Read More
I love you, but . . .

I love you, but . . .

Written by PCD Smiles on September 02, 2021. Posted in Topic Thursday

These are the words that stuck with me this year. As a person with PCD, the word “but” is a word...
Read More
Disordered Sleeping and Sleep Disturbances in PCD

Disordered Sleeping and Sleep Disturbances in PCD

Written by PCD Smiles on August 24, 2023. Posted in Topic Thursday

Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not...
Read More
The ACTs of PCD

The ACTs of PCD

Written by PCD Smiles on August 12, 2021. Posted in Topic Thursday

The ACTs or Airway Clearance Techniques of PCD (Primary Ciliary Dyskinesia) are used to help...
Read More