By adulthood, nearly every person with PCD will have bronchiectasis. As bronchiectasis progresses, infections worsen and can sometimes lead to respiratory failure. Some people with PCD may need lung transplantation if their lungs fail. 

https://www.thoracic.org/patients/patient-resources/resources/pcd.pdf

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People with PCD who live together, can help decrease the spread of germs between themselves by doing airway clearance at different times and in different rooms.

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Most observational studies in PCD have been cross-sectional, and knowledge of prognosis is based on a handful of longitudinal studies with relatively few patients.

https://adc.bmj.com/content/99/9/850

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Even when the diagnosis is successfully made, the disease may be poorly understood outside specialized centers, and thus adequate care and follow up may be lacking.

https://www.atsjournals.org/doi/10.1164/rccm.200303-365OC 

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We have several ways that you can donate to PCD Smiles;

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