Did you know that smell and taste are intertwined in our brain, so when you lose your sense of smell, you also lose your sense of taste. “The tongue can detect basic tastes like sweet, sour, savory and bitter, but the nose detects flavor,” says Dr. Danoun. “So if you lose your sense of smell and eat a strawberry candy, for example, you might know you’re eating something sweet, but you might not know that it’s strawberry flavored.”

https://www.henryford.com/blog/2022/01/regaining-sense-of-smell-and-taste-after-covid

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***

Did you know that, according to the Cystic Fibrosis Foundation there are seven major airway clearance techniques (ACTs) for patients with mucociliary clearance disorders? Airway clearance is needed to help clear away mucus from the lungs to help prevent infections and to improve lung function. Children will need an adult to assist with ACTs, and different patients will prefer different methods of airway clearance. The seven major airway clearance techniques are deep coughing, huff coughing, active cycle of breathing (ACBT), autogenic drainage (AD), chest physical therapy [(CPT); is also known as postural drainage and percussion (PDP)], positive expiratory pressure (PEP), and oscillating positive expiratory pressure (OPEP). While exercise has gained popularity in recent years as an ACT, in reality it is the ACBT or active cycle breathing techniques that take place during physical exercise that provide the mucociliary clearance benefits of regular exercise. Regular exercise as a side effect also helps to strength the diaphragm and strength the body’s muscles. Strengthening the muscles helps the body work more efficiently with less oxygen.

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***

Did you know that over time, chronic inflammation and infection damage the airways permanently, causing irreversible widening and scarring called bronchiectasis (which may require a CT scan of the lungs to ybe seen). By adulthood, nearly every person with PCD will have bronchiectasis. As bronchiectasis progresses, infections worsen and can sometimes lead to respiratory failure. Some people with PCD may need lung transplantation if their lungs fail. (For more information, see ATS Patient Information Series Bronchiectasis at www.thoracic.org/patients) There is currently no cure for PCD, but there are several promising medical treatments that may slow its progress. While quality of life can be severely affected for people with PCD, there is a wide range of disease progression and long-term outlook in patients, and there is no average “life expectancy.

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***

Did you know that the persistent middle ear effusions seen in primary ciliary dyskinesia (PCD) cannot be prevented, but that early and aggressive use of antibiotic therapy can treat acute otitis media? The use of tympanostomy (or myringotomy) tubes to treat middle ear disease is considered by some otolaryngologists to be a “double-edged sword.” Their placement can potentially improve hearing, but chronic drainage (otorrhea) is a common complication of tympanostomy tubes in primary ciliary dyskinesia patients.

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***