• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
  • ACT Series, 7: Postural Drainage & Percussion (PD&P)

    ACT Series, 7: Postural Drainage & Percussion (PD&P)

    As we continue our deep dive into airway clearance when percussion is added to postural drainage it is known as postural drainage and percussion or PD&P in the United States. PD&P is also known by...
  • ACT Series, 6: Postural Drainage

    ACT Series, 6: Postural Drainage

    As we continue our deep dive into airway clearance the first technique for airway clearance was postural drainage (PD). This technique was first seen in a 1934 paper by H.P. Nelson. It operated on...
  • ACT Series, 5; Autogenic Drainage

    ACT Series, 5; Autogenic Drainage

    As we continue our deep dive into airway clearance our second breathing technique for airway clearance is autogenic drainage (AD). This technique was developed in 1967 by Jean Chevaillier and was...
  • ACT Series, 4; Active Cycle Breathing

    ACT Series, 4; Active Cycle Breathing

    As we continue our deep dive into airway clearance our second, most basic, and next easiest airway clearance technique (ACT) is breathing. Breathing is another important part to all other airway...

This week we take a bit of a turn with our Fun-Physio as it is often important to highlight the dangers of not doing physio properly or not using the right tools. This week we will highlight a device that is NOT a physiotherapy device for airway clearance. And actually continued use of same exact incentive spirometry device over and over can reintroduce harmful mutated bacteria into your PCD loved one’s airways. Incentive spirometry dev are often used after surgical procedures to help prevent patients from getting pneumonia. These devices are great for that intended purpose. What they are not great for are is that the devices can’t be completely and properly cleaned and sterilized. This makes them unsafe for mucociliary clearance patients who are unable to clear their airways on their own. Incentive spirometry devices require you to breathe in and out through them. And since they can’t be throughly cleaned and they can’t be sterilized this means the bacteria we breath into the devices take up residence in the device where they can grow and mutate into worse bacteria. This bacteria is then reintroduced into the patient’s airways as they device is repeatedly used.

Incentive spirometers have their place. They can safely be used for a period of mere days, but then need to be thrown in the trash. Learning that airway clearance goes beyond the method and includes so much more than just proper breathing and coughing is extremely important in PCD care. So ditch those old incentive spirometry devices in the trash where they belong. Also do not confuse an incentive spirometry device with a PEP device or and OPEP device. Speak with your clinic’s PCD Respiratory Therapist today for a more tailored airway clearance toolbox.

If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Random Fact Friday 2024.61

Random Fact Friday 2024.61

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Random Fact Friday 2024.54

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