Smell and taste are intertwined in our brain, so when you lose your sense of smell, you also lose your sense of taste. “The tongue can detect basic tastes like sweet, sour, savory and bitter, but the nose detects flavor,” says Dr. Danoun. “So if you lose your sense of smell and eat a strawberry candy, for example, you might know you’re eating something sweet, but you might not know that it’s strawberry flavored.”

https://www.henryford.com/blog/2022/01/regaining-sense-of-smell-and-taste-after-covid

The more you know…

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The idea that PCD patients would experience the same benefits that cystic fibrosis patients did from early diagnosis and aggressive medical management is based on some limited observational data. Whether the hypothesis pans out has yet to be shown.

The more you know…

Join our Facebook group Turtle Talk Café today, click here. 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

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- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

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What is the long-term outlook for people with PCD?

Over time, chronic inflammation and infection damage the airways permanently, causing irreversible widening and scarring called bronchiectasis (which may require a CT scan of the lungs to be seen). By adulthood, nearly every person with PCD will have bronchiectasis. As bronchiectasis progresses, infections worsen and can sometimes lead to respiratory failure. Some people with PCD may need lung transplantation if their lungs fail. (For more information, see ATS Patient Information Series Bronchiectasis at www.thoracic.org/patients) There is currently no cure for PCD, but there are several promising medical treatments that may slow its progress. While quality of life can be severely affected for people with PCD, there is a wide range of disease progression and long-term outlook in patients, and there is no average “life expectancy.”

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday

#PCDawareness to help find a #cure4PCD!