• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Today’s featured artist is Crissi Brooks with her submission titled “PCD Awareness 2023”.

“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto-sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure. Recently, significant progress has been made in PCD diagnosis, yet few physicians outside of highly experienced PCD centers are skilled in recognizing the characteristic clinical phenotype and interpreting diagnostic tests. Patients often receive false-positive or false-negative PCD diagnoses, as physicians are unaware of the pitfalls commonly encountered with ciliary electron microscopy, PCD molecular genetic panels, ciliary motility studies, and nasal nitric oxide testing. Furthermore, PCD is often missed when respiratory symptoms are present in patients with other complex diseases involving cilia, such as heterotaxy and various genetic syndromes.”  ~ Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review - Adam J. Shapiro MD, Maimoona A. Zariwala PhD, Thomas Ferkol MD, Stephanie D. Davis MD, Scott D. Sagel MD, PhD, Sharon D. Dell MD, Margaret Rosenfeld MD, Kenneth N. Olivier MD, Carlos Milla MD, Sam J. Daniel MD, Adam J. Kimple MD, Michele Manion, Michael R. Knowles MD, Margaret W. Leigh MD, for the Genetic Disorders of Mucociliary Clearance Consortium

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD friend or family member.

The PCD Artist Project’s 2023 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

  • Hits: 2143
Random Fact Friday 2024.138

Random Fact Friday 2024.138

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
Random Fact Friday 2024.131

Random Fact Friday 2024.131

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
Random Fact Friday 2024.123

Random Fact Friday 2024.123

Did you know that this study found that patients...
Things Not to Say to a Person with PCD or their Caregivers

Things Not to Say to a Person with PCD or their Caregivers

For Rare Disease Day 2018 we asked the PCD (Primary Ciliary Dyskinesia) community, “What are your...