• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Dear Smile E.,

How often should your doctor do a culture and why?

Signed,

A Tissue Box a Day Habit

 

Dear A Tissue Box a Day Habit,

According to the PCD Foundation’s Consensus Statement, surveillance cultures of expectorated sputum are recommended two to four times annually for patients with PCD. These recommended cultures should be processed in the same manner as cystic fibrosis cultures. These cultures will help guide antibiotic therapy for future exacerbations. Additionally when the PCD patient’s infections aren’t responding to antibiotics that the infections are susceptible to then doctors should consider following up with NTM and fungal cultures, allergic bronchopulmonary aspergillosis testing, and bronchoscopy with lavage fluid cultures.

Surveillance cultures allow your doctor to track your overall lung ecosystem. This is important when deciding what tests to preform when you show signs of illness. It gives your doctor a starting ground to go off of. These cultures also help the doctor to decide what antibiotic therapy you might benefit from during an exacerbation. Knowing what organisms/ bacteria your lungs, sinuses, and or ears grow is an important part of managing your PCD.

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.?

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

  • Hits: 2266
Random Fact Friday 2024.138

Random Fact Friday 2024.138

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
Random Fact Friday 2024.131

Random Fact Friday 2024.131

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
Random Fact Friday 2024.123

Random Fact Friday 2024.123

Did you know that this study found that patients...