• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Today’s featured artist is Mel LaPour with her submission titled “Transition”.

 

“Clinical symptoms in PCD affect the entire respiratory tract; the majority of symptoms occur on a chronic, daily basis and start soon after birth. At least 80% of newborn babies with PCD develop neonatal respiratory distress despite a full-term gestation, with increased work of breathing, tachypnea, and prevalence of upper and middle lobe atelectasis on chest radiographs. Most PCD patients are well immediately after birth, but develop respiratory distress at 12–24 hr of life (as opposed to other causes of respiratory distress in term neonates (e.g., transient tachypnea of the newborn—TTN), which often present in the first few hours after birth). A small proportion of PCD patients are discharged home on day 1 of life but are then hospitalized with respiratory distress within the first few weeks of life. Often misdiagnosed with TTN or pneumonia, PCD infants frequently require supplemental oxygen for days to weeks.” ~ Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review - Adam J. Shapiro MD, Maimoona A. Zariwala PhD, Thomas Ferkol MD, Stephanie D. Davis MD, Scott D. Sagel MD, PhD, Sharon D. Dell MD, Margaret Rosenfeld MD, Kenneth N. Olivier MD, Carlos Milla MD, Sam J. Daniel MD, Adam J. Kimple MD, Michele Manion, Michael R. Knowles MD, Margaret W. Leigh MD, for the Genetic Disorders of Mucociliary Clearance Consortium

 

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD friend or family member.

 

The PCD Artist Project’s 2022 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

 

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

 

Visit our shop today for your exhibition merchandise and more!

 

https://www.smileecove.com/stores/cove

 

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist;  https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

Thank you for your consideration! 

#PCDsmiles  #PCDstyle  #PCDsmilesCookbook  #PrimaryCiliaryDyskinesia  #SmileEcove  #TurtleTalk  #TurtleTalkCafe  #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!  

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