• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
  • ACT Series, 7: Postural Drainage & Percussion (PD&P)

    ACT Series, 7: Postural Drainage & Percussion (PD&P)

    As we continue our deep dive into airway clearance when percussion is added to postural drainage it is known as postural drainage and percussion or PD&P in the United States. PD&P is also known by...
  • ACT Series, 6: Postural Drainage

    ACT Series, 6: Postural Drainage

    As we continue our deep dive into airway clearance the first technique for airway clearance was postural drainage (PD). This technique was first seen in a 1934 paper by H.P. Nelson. It operated on...
  • ACT Series, 5; Autogenic Drainage

    ACT Series, 5; Autogenic Drainage

    As we continue our deep dive into airway clearance our second breathing technique for airway clearance is autogenic drainage (AD). This technique was developed in 1967 by Jean Chevaillier and was...
  • ACT Series, 4; Active Cycle Breathing

    ACT Series, 4; Active Cycle Breathing

    As we continue our deep dive into airway clearance our second, most basic, and next easiest airway clearance technique (ACT) is breathing. Breathing is another important part to all other airway...

Dear Smile E.

Can I still burn candles after a PCD diagnosis has been made? I mean is it safe to do so?

Signed,

Concerned Parent

Dear Concerned Parent,

Can I assume that you have a child with a recent PCD diagnosis? In any case, this is something that you may want to discuss with their medical team for more information on. The short answer is probably going to be no, especially considering all the information on air quality, air pollutants, and such things regarding pulmonary patients. Most pulmonologist will give you the information that it’s probably best not to. And I’m not physician and my advice isn’t meant to replace that advice.

The long answer is life is life and so are exposures. Some PCD adults actually do enjoy candles, even campfires and wood stoves too. I am one of those people. As with anything there are risks and there are benefits. Figuring out those are unique to each person in the planet, PCD aside. I burn candles for the light, as my sense of smell from the affects of PCD is virtually gone. I don’t get any smell enjoyment from candles in the slightest anymore. However, even though I can’t smell them, certain chemical smells bother my lungs and send them flaring. When choosing a candle scent I have to weigh those reactions to my choice. And even then the candles I do burn, aside from being chosen not to make my lungs reactive, I chose scents pleasing to my partner instead. My partner can smell, I can not. So those might be things to consider about your PCD loved one.

Yours Truly,

Smile E. Turtle

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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