We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more difficult. Maybe it’s I’m getting older and older and my PCD progression marches on with time. Maybe it’s I feel no one is listening and no one actually cares. Honestly it’s probably just vid fatigue. Everyone is tired of hearing about medical issues. You got what a you got so get on with life, is pretty much how I’d sum up everyone’s attitudes. It’s no secret that 2022 has been a hard year for me. All things considered, and all things laid bare I’m ready for a change. Though I’m not sure what kind of change I’m looking for either.
In a few weeks time, everyone is going to role out all the positive life stories despite PCD. I’m kind of envious, because I want my rose colored life too. That’s just not the hand I was dealt unfortunately. It wasn’t some magical life where my parents loved me and supported me despite PCD. PCD made my life hard, harder than I wished it had and that is just the truth of the matter. I look around at all these rosy storylines of people with PCD with a bit of envy and a bit of skepticism. Are they really telling the whole truth or have they just not gotten to the harder aspects of doing life with PCD yet. I wonder about the embellishments of storylines of others in public all the while behind the curtain they are a whole different person with a whole different story. Why must we suffer our trials in private? Why is it such a taboo thing to share your PCD struggles? These are my thoughts as I read all these wonderful storylines of PCD life. PCD life is tough and I’m not sure why we are supposed to hide that fact.
PCD Awareness month is a necessary evil because we need awareness to help fund a cure. However doing life with PCD isn’t some grand adventure where they live happily ever after. I think maybe that fact has been glossed over too much…
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